Professor Mark Taylor

Overview

Mark is the Director of the Collaborative for Better Health and Regulation and HeLEX@Melbourne. His research is focused upon the regulation of personal information with emphasis upon health information and genetic data. He is interested in privacy law and data protection and has a particular interest in trustworthy governance of health data used for secondary research purposes.

Mark seeks to develop a concept of public interest that is capable of reconciling individual and community (privacy) interests with the information needs of a learning health system under conditions of trustworthy governance.

Interim Chair of the Data Governance Board, My Health Record (Australian Government, Department of Health and Aged Care. Immediate past Chair of the Confidentiality Advisory Group (England and Wales). Mark served as policy advisor to the Health Research Authority (England), the National Data Guardian for Health and Social Care (England) and a member of the UK’s Medical Research Council’s Ethics, Regulation and Public Involvement Committee (ERPIC) and Genomics England’s ethics advisory committee.

Mark was legal consultant and member of the drafting group for the OECD Recommendation on Health Data Governance. Author of Genetic Data and the Law (CUP 2012) and Technology, Innovation and Health Care (Edward Elgar, 2022).